Because of this Mila must be on close watch in Neonatal Intensive Care Unit (NICU). A specialized geneticist is going to do some tests on her this Monday to determine exactly which type of OI Mila has. They suspect she has type 3.
What this means is that she will be prone to bone fractures throughout her life, and perhaps a relatively shorter stature as an adult as well as blueish-grey tint to the whites of her eyes.
Life is fragile.
However, it isn't the fact that we'll always have to be extra careful with Mila that reminded us of this. What really reminded us that life is fragile is that we aren't allowed to hold and hug our new little daughter.
People always have and will continually break bones, have discolored eyes, or even have non-functioning pancreases, be too short or too tall, have this disease or that disorder. But not being close to those you love is a trauma worse than any physical diagnosis.
Stay close to those you love, hold them and give them a hug. Very soon we'll be able to do the same with Mila.
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Love the family picture! You Guys are in our prayers. She couldn't have gotten better parents!!
ReplyDeleteJosie will not let me close this page. She is loving baby Mila already!!!!! We love her too. PLEASE let us know if you need anything!!!!!
ReplyDeleteWe'll be praying for baby Mila, and you guys too! Josh wants to know if it's pronounced (me-la) or (my-la)?
ReplyDeleteThank you, everyone.
ReplyDeleteIt is pronounced "My"-"la". She is perfectly happy right now all doped up on morphine and sleeping hard.
We'll maybe get to bring her home by Tuesday. The big factors are getting her pain managed (she has a fractured rib) and making sure she eats.
Again, thanks for everyone's concern and support.
Mila and all of you are in our prayers. I agree that she could not be blessed with better parents. I love you much.
ReplyDeleteShe is so pretty - congratulations! The two of you are indeed the best parents to meet her unique needs. Hugging that precious bundle is something to look forward to. You are all in our prayers. Love, Aunt Lisa and Uncle Terry
ReplyDeleteShe is beautiful! We will remember you and your sweet family in our prayers.
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